Best Foot Forward

I spend a lot of time listening to radio phone-in programs and these last few weeks have been a treat for lovers of unusual discussion points. I made a note of some of my favourite topics.

  • ‘Has your electric car ever run out of power on the M4?’ (Oddly specific question, what about people who lost power on the M6?)
  • ‘Would you stay friends with somebody who orders Filet o Fish at McDonalds?’ (general consensus was no)
  • ‘Does the wind play havoc with your toupee or miniskirt?’ (a rare chance for sufferers of toupee related trauma)
  • ‘Do you know what the word bonk means?’ (perhaps their work computers wouldn’t let them Google it)

Of course, there has also been plenty on the coronavirus. People are worried about their Christmas plans ‘there are eight in my family, who would have to pay the fine if we had dinner together? Could we share it’? Quite why people are already making Christmas plans in early October is a bit of a mystery to me.

It was a caller to one of these programs that made me think. ‘My husband is a surgeon and if he can wear a mask for eight hours in the operating theatre, you can wear one for twenty minutes’. I have got a mask in my bag but since I have a medical exemption, I have never actually used it.

Following an encounter with a shop worker who was horrified at my bare face and rising case numbers, I decided that rather than mess about with face coverings, if would be better not to go into shops at all and get everything online instead. This was fine until I became aware on my daily walk, that my right foot was getting very cold.

In retrospect, I had become aware that something weird was happening days ago but never thought to look. In fact, the entire sole of my right shoe had fallen off making me walk with a weird sway. This could have happened anywhere and the dry ground over the last week meant I never noticed.

So, how do I get shoes online? Isn’t this something I really should get from a shop so I can try them on? The admin of sending back shoes that don’t fit means I just wouldn’t bother and instead order more. I could end up with a whole pile of ill-fitting shoes. I thought again about the caller to the radio program, ‘My husband is a surgeon and if he can wear a mask for eight hours in the operating theatre, you can wear one for twenty minutes’.

I took a few deep breaths outside Sainsbury’s and gave it a try. I have resisted mask wearing because it is a change and change is scary but, of course, it was fine. A case of the idea being worse than the reality.

Fast forward a few days and I have completed a total reversal in my thought process. Mask wearing means I better blend into the crowd without fear of challenge, I am much more protected from the cold wind and no longer need to walk with broken shoes. However, my thoughts on the great Filet o Fish debate remain unresolved.

Road to Nowhere

When planning a cruise, it is worth looking at where the ships actually dock. Very often, the places visited are unable to take massive passenger liners as the seabed is too shallow or the channels too narrow so the ships end up miles away, often in freight terminals with nothing in walking distance and a long bus ride to the advertised destination.

The port advertised as Rome is more than an hour from the city, visitors to Cairo are disappointed to find they actually arrive more than 120 miles away and people with no local knowledge are surprized to find that rather than seeing Big Ben from their window they are really in Southampton. This goes some way to explaining why I ended up in Whittier, Alaska.

Whittier is where the cruise ships dock to pick up their guests from the airport in Anchorage (about 60 miles away) and is a place so unusual it is hard to describe. Its official website describes it as a city but since it only has around 200 residents this gives a false impression of its size. Almost everyone lives in the same building, a former army barracks resembling a university hall of residence. The 14-story block is called Begich Towers and has its own tiny shop, church in the basement, post office, launderette, cork notice board in the entrance and reindeer pen outside.

Who would live in a place like this?

There are steep mountains around three sides of Whittier and the sea along the fourth. This access problem is what makes it so distinctive a place to visit. The only way to get anything in or out is through a single lane three-mile-long tunnel. For thirty minutes you can only travel in one direction then for the next thirty minutes you can only go the opposite way, unless it is night-time in which case the tunnel is closed altogether and fishing boats are the only choice. The problem for the boats is the wind, it is not unusual for 60mph winds to blow for an entire week and the police force patrol the hills on skis. Bemused tourists leave their cruise ships to ‘explore the town’ and are back within an hour.

However, on the rare day the sun is shining (Whittier suffers 200 inches of rain per year) it is the most beautiful place imaginable. Mountain goats, sea otters and 26 glaciers all of which make for a memorable day, although what it is like to live there, year-round, is another question.

I think this setting would be perfect for a crime novel. A tower block cut off from the world by weather and location, no way in or out… I should get on to writing that one day.

Thursday 26th March 1998

In the morning PSE Video, one about AIDS

RS another video. Geography industry

In the afternoon English papers, looking at the test mark

French written exam paper

After school bought a tape, looked at magazines

In the evening music lesson. It went really well too.

Watched TV and videos, recorded another side

I am looking forward to Easter

Morning 6, afternoon 6, evening 5

Summary not bad day I suppose. Total 6

I am 16 and this was my last year at high school (hence all the talk of exams and test marks). There is one week left until the Easter holidays and I have evidently discovered grammar.

Our high school had a two week timetable with week A and week B, so all the ‘minor’ subjects were only 45mins every two weeks. One of these was PSE, something I completely forgot about until writing this. I went online to try and jog my memory for what this was and according to the online dictionary, there are 141 things PSE could stand for. Some of them I can eliminate fairly quickly, we were obviously not taking classes in ‘Philippine Stock Exchange’, ‘Precision Shooting Equipment’ or ‘Parti Socialiste Européen’. Instead I have deduced this must have been ‘Personal and Social Education’ a subject that made so little impact on me, I can’t remember ever doing it. Anyway, it seems like it included a video about AIDS.

Videos must have been a big part of my life. They are mentioned three times in this one diary entry. During the mid-nineties there was a craze of digital watches that had a remote control function. Our classmates used to play havoc with the teachers (who could never work the video recorders) by pointing their watches at the receiver and fast forwarding or stopping the film. It was great fun until the teachers realised what was happening and deprived us of the ‘joy’ of watching a decades old educational video.

‘Bought a tape, looked at magazines’ was a typical way I spent my journey home. We had the oddest independent record shop on our local high street. Rather than everything being stocked in alphabetical order or by genre, the rather eccentric owner categorised everything by record company and then by the sub category of release date. So if you knew that it came out on Sony records in 1988, it was easy to find. If not, you had no choice other than to ask the owner who would then theatrically sigh and mutter before making a big performance about how obvious it was where to look. It is little wonder that shop shut down.

My music lesson referred to my brief phase of learning the clarinet. I was terrible and could do little more than produce high pitch squeaking noises. Much like learning languages, if I couldn’t do it straight away, I lost interest. My clarinet teacher was a super fan of Eastenders and I found that I could distract her so much with discussion of her beloved soap opera and so could waste the whole lesson and avoid playing a note. I gave up when I failed my grade 2 exam and gave my clarinet to charity without telling my parents. By the time they found out, it had been sold.

‘Morning 6, afternoon 6, evening 5. Summary not bad day I suppose. Total 6’ was fairly standard. 6/10 was a good day, 5/10 was a bad day. As far as I can see, there were only three days in the whole of 1998, I didn’t score as either a 5 or 6 (they were 7s). Nuance has never been a friend of mine.

A Death To Report

               The external phone was ringing. The external phone never rang, it took me a few seconds to work out what the sound was. In fact, the internal phone only rang if somebody dialled the wrong number.

               ‘Hello, hospital radio, you are through to the studio’ I answered.

               ‘In a couple of hours, the death of the Queen Mother will be announced’ a serious man said.

               ‘Right… what should I do?’ I replied

               ‘I advise that you ask the station manager’.

               ‘I am the station manager’.

Silver Dynamic Microphone on Black Microphone Stand

               It was 2002 and I had been presenting my Saturday lunchtime program on the hospital radio station for a couple of years. It was a fairly straight forward program, I talked about what was going to be on TV that night, reported some interesting historical facts and read from my book of amusing quotes from the current US president George W Bush. Things like ‘I know human beings and fish can coexist peacefully’ or ‘I think we agree, the past is over’.

               The previous manager had left, and it was decided that I would take over. This decision was arrived at because nobody else was interested in doing it. I took over the training of new presenters and applying for funding. Being the manager, I also discovered that we had no listeners. This wasn’t because nobody liked it or nobody knew about us but because the transmitter was broken and had been out of action for years. It was not possible for anyone to listen even if they wanted to. This was why it was so surprizing when the phone rang.

I knew how to work about 10% of these buttons.

               We already had a list of songs that were not suitable to be played for the patients. These included;

  • Queen – Another One Bites The Dust
  • Europe – The Final Countdown
  • Roberta Flack – Killing Me Softly
  • Bob Dylan – Knockin’ on Heaven’s Door

I wasn’t going to play any of these songs anyway and George W Bush didn’t have a lot of Queen Mother content so I decided it would be ok to just ignore the call and carry on as before. Plus, if I did get the tone wrong, we were unlikely to get any complaints. Nobody was listening.

No change please, I’m autistic

Like many autistic adults, I like living alone and having my own space is important to me. I don’t need other people being there making noise and mess. I don’t throw dinner parties and I am very happy with this situation. The problem is that I also cannot do DIY. The idea of doing even the simplest task myself is cripplingly stressful particularly if it involves any equipment. So, when things brake (or I can’t understand how to work them) I find ways to work around them. It is just easier.

  • My new microwave didn’t come with an instruction manual and the one I found on the internet didn’t match so I have not used it. That was two years ago so I heat everything on the hob.
  • The lights have a complicated fitting meaning I can’t work out how to get to the bulb. As a result, my flat is getting progressively darker. I now need a torch in the bathroom.
  • When my shower broke, rather than getting somebody to fix it. I started showering at the leisure centre instead for a few months until I finally called the landlord who quickly fixed it while I took deep breaths.
Flat Lay Photography of Hand Tools

The other day, we had a couple of cold nights so I tried turning on the radiator. Of course, I had forgotten that it stopped working ages ago. Feeling brave, I decided to try hitting the thermostat with a spanner. Amazingly it worked. Trouble is that now I can’t turn it off again and am back to sleeping on top of my duvet.

All this is part of a wider anti-change agenda that occurs in my mind. Anything that is likely to cause disruption should be avoided and this is where I now find myself. When the world changed in March, I lost my job and my flat with only three days notice. Should I have fought? Possibly, but I just didn’t have the energy.

               Now, six months later I have fallen into a nice routine. This is so important for me and for so many autistic people. I recently heard an interview with an autistic man who has eaten the same dinner every night for seven years even though he stopped enjoying a long time ago. When the supermarket stopped selling one of the ingredients it caused him real problems. I can relate to that.

               It occurs to me that I will need to go back to work soon but changing my routine is a real mountain for me to climb at this moment. I know that living like this forever is unsustainable and my savings will not last indefinitely, but I am settled. I go on a walk each day, I listen to the radio, I write, I am content.

“I never put off till tomorrow what I can possibly do – the day after.”

Oscar Wilde

Wednesday 23rd August 1995

An extract from my childhood diary as I was approaching my 13th birthday. We are staying in a caravan in Cornwall for our annual summer holiday.  

What lovely handwriting!

day good

in the morning went to land’s end it is good

went in the car took ages traffic jam

had lunch by the sea and the cliffs

in the afternoon

went on a lifeboat and made a model of sand mixture with glue too

watched a film about the sea

dates last day

tomorrow last day

weather rain + cool temp 22

summery v. good day enjoyed it

It took me a long time to decipher the pencilled scrawl I was using back then. My handwriting appears to have got much worse over the preceding months. Much of that seems to be due to my insistence to fill all the available space. Rather than writing any extra thoughts to achieve this, I have simply stretched the words out by writing larger letters to make sure I got to the right hand margin.

Reading back over this and since I hadn’t really mastered using any kind of detail, I have so many questions. What was the film? Why was using glue so notable? How did I count 22 degrees as being cool? What does ‘dates last day’ actually mean? Why wasn’t I using grammar?

One thing I have managed to decipher was my day classification system used on the first line. This day was ‘day good’. Other days in the same week were ‘day alright’ (visit to Sea Life centre) ‘day alright-good’ (French boules tournament) and even ‘day bad-ok’ (missed crazy golf due to an undocumented reason). I had a great fondness for crazy golf and on one memorable day, hit my ball into a pond and then dropped my club in too while trying to retrieve the ball.

Street vendors not shown

I chose this diary entry to write about as I have a clear memory of going to Land’s End and getting a family photo (which I have failed to find) next to the famous sign. I was surprised that a whole village of tourist stuff had built up around Land’s End; shops, cafes, pubs, holiday cottages all rather ruining the remote idyll of being at the end of the land. While travelling as an adult, I have found that this is typical, Niagara Falls has it’s own casino, the Pyramids in Egypt have a branch of Pizza Hut while ancient stones at Machu Picchu were moved to build a helipad.

One thing that is very me is visiting a lifeboat station. I didn’t remember my interest going that far back but I have been to many stations since and at one point even ran tours around them. More recently I have been asked (several times) to volunteer but there is no way my autistic brain could cope with that. Maybe if people could pre-book their emergencies so I would have time to prepare taking care to ensure the weather and time of day were suitable (going out in the dark is no good) then I would be in with a chance.

One thing that is becoming clear, I am unlikely to join the ranks of Samuel Pypes and Anne Frank as a leading diarist with my weather and traffic jam observations.

Recommended For Who?

This week I ordered a book from Amazon as a birthday gift. Yes, absolutely, I could have walked into town and used our local independent book shop, like a good citizen supporting the struggling high street businesses but it was lightly raining and I am lazy.

Upon checkout, I had the option of choosing three day delivery (an extra £4.99) or five day delivery (only £2.49). As the birthday isn’t until early September, I chose the later option. It was delivered the next day, which is great customer service but makes me wonder what the point of the two delivery options is when it arrives the next day regardless.

I immediately got an email asking me how the delivery was and on the bottom, saw the following magazines were recommended for me:

Apart from the combination offered, the next thing that struck me is how expensive the Kindle version of the Radio Times is, no wonder it is struggling in the star ratings. According to user reviews, it doesn’t arrive until halfway through the week when many of the programs have already been on.

This sent me down an online wormhole of discovering what else is recommended for me.

Apparently, the algorithms have decided I am interested in:

  • Wooden flooring installation
  • Campari
  • Children’s shoes
  • Retirement homes
  • Inflatable palm trees

I have not taken this list as a compliment. I mean, Campari?

I am 38, not quite ready for a retirement community.

How many people are looking for both children’s shoes and retirement homes. Also, I wonder how the inflatable palm tree market is doing during these ‘unprecedented times’…

All this makes me want a Campari.

Lack of Talent Show

Putting on a talent show towards the end of a holiday is a guaranteed way to pull in a large crowd, meaning the managers are always very keen to include them in the programme, even if what comes on stage isn’t worth the effort. There are a number of steps to the process.

Step One – Registration

               A notice would be displayed asking people wanting to take part to meet at a given time. This is important to measure the level of interest and also filter out those who are unsuitable for a family show (generally, men of a certain age who don’t understand why their jokes are offensive “you can’t say anything these days”) or those who are not ready. “I would like to play the violin” “great, do you have a violin?” “not with me”

Musician playing drums on stage near guitar

Step Two – Rehearsal

               This is by far, the worst part of the process. The people who turn up are usually completely different to the people who registered in the first place and at least half will have changed their act to something entirely different. A group of singing kids who now want to make gingerbread instead, that kind of thing. Another problem that raises its head at this stage, is that many of the people who registered don’t actually have an act and want me to teach them a dance routine or how to juggle by tomorrow.

               Between the rehearsal and the show, it is inevitable I will receive a series of emails, letters and phone calls regarding the people who have signed up. About a third will have changed their minds (often the best ones) but have found somebody to take their place. I have learned, it is worth checking if this other person actually knows they are being volunteered.

               Then come the requests. I now always bring the lyrics of the songs as it is probable many people won’t know most of the words to their tune of choice.  People suddenly decide it is vital they are provided with a long list of items they can’t possibly perform without. Often it is costumes “do you have a white and orange stripy jumpsuit I can borrow in a size 12” or “is there a leather jacket you don’t need that I can paint slogans onto?”. Other things I have been ask to locate with little warning have included a hay bale, three tins of yellow paint, a grand piano together with somebody to play it, a live dog and a mini cooper that can be driven through a fire door onto the stage.

People at Theater

Step Three – The Show

               No matter how early I arrive, there will be a line of people wanting to talk to me. People who were up late drinking have mysteriously fallen ill and can’t perform, people who have suddenly realised they don’t have the music they need, people who have written their own introductions for me to read out (often at least three pages long) and almost nobody will want to do what they did at the rehearsal yesterday. I will have to change the running order at least half a dozen times before we begin.

               The majority of the time, the shows are fine, if a little underwhelming. They are usually very fast, many people are done in less than 60 seconds and I have to stretch the time to make it worthwhile. There will always be a child who forgets what they are doing and starts crying. Also, somebody who announces that I wouldn’t let them do what they wanted. How unfair, they tell the audience, I didn’t provide them with a kangaroo costume that their family only requested two minutes after the show started. In amongst the people doing star jumps, blowing up balloons with their nose and telling slightly off-colour poems rather than the sonnet agreed, we struck gold.

  • Some children playing flutes while simultaneously doing ballet
  • A couple who both took the opportunity to propose marriage to the other
  • A young woman who played 80s rock songs on the vacuum cleaner

In 2018, I made the best decision of my life, not marriage or children but to never run another talent show. I have never been happier.  

Get A Job

This would be a great opportunity to explore a new career” said the lady being interviewed on the radio.

Like millions of other people, I am currently unemployed and am not finding job hunting easy. There is not much available and what is on offer isn’t that appealing. There have been stories in the news this week about thousands of people applying for a single position as a bar tender. If candidates with masses of qualifications and years of experience are finding it tough, what hope is there for people like me?

So, what can I actually do? When I was at high school, we had to fill in a skills survey and the results arrived a few days later in the post. I remember opening the letter excitedly only to find that my top match was prison officer. This experience has made me a little sceptical of the careers guidance profession.

An online job search this morning was fairly typical of the last few weeks. Almost everything on offer was either construction (to which I am not well suited) or care providing (which apparently needs certificates). I saw a company advertising for a ‘Front End Developer’. The skills required included ‘React.js, Angular & Vue.js’ and the fact I have no idea what language this is, almost certainly means I am unqualified.

I decide to start filling in a government provided, online career guidance skills assessment. They are free and are supposed to only take a few minutes. It is a long series of questions and I need to tick a box on a scale between strongly agree and strongly disagree.

  • I am comfortable telling people what they need to do
  • I make decisions quickly
  • I prefer to follow what other people are doing

The questions keep on coming and as my brain starts to melt, the ‘I am unsure’ box gets used more and more.

  • I set myself targets
  • I am a competitive person
  • I like to see things through to the end

By the time it is all over, I am completely beaten into submission and have no idea if I agree or not. The only positive decision I have made so far is to get a lottery ticket and hope that it solves all my problems.

Eventually the results come through. My top matches are

  • Member of Parliament
  • TV Stuntman

I wonder what I must have ticked to make this combination of results.

A quick check of the job centre shows that neither of these occupations have any current vacancies. It is true to say my scepticism for careers guidance remains unchanged.

Now, where is that lottery ticket?

Saturday 6th March 1993

I have been recently reunited with my childhood diaries. This is the first entry I wrote;

Swimming club, crawls 56

Metrolink to Manchester, went to the Arndale Centre.

Went bowling, I won 74-71. 3 point difference.

Mild and cloudy. 9 temp.

Summary: a tiring day but one I will always remember 10/10.

This was the final year I was at primary school, three years before the Arndale centre I mentioned got destroyed by an IRA bomb and it is so interesting to read it again 27 years later. The Metrolink is the tram service and because it goes along the streets rather than underground or on train tracks, I found it very exciting and if I am honest, I still do.

As a child, I was a keen swimmer and went to swim club at the council run leisure centre twice a week. I was hopeless and used to hop along the bottom of the pool thinking nobody would notice. Because of this, I was one of the last to get my 10-meter badge. I tried for years to make it onto the team, eventually I managed and was on the relay team at a gala against another local club. I was so slow that I wasn’t asked again and stopped going not long after. (crawls 56, meant I did 56 widths of front crawl. Yes, I counted).

Ten pin bowling seemed so innocent then, before the government deemed it to be an activity at high risk of spreading disease. My main memory of bowling was the anxiety of not getting my shoes back at the end. When I was young, I was convinced that my shoes would be lost, and I would be stuck with those weird red and white bowling shoes forever. I found out recently the reason for the shoe changing at the bowling alley is that they help the player slide down the lane. Quite why you would consider young children sliding around with heavy bowling balls to be a good thing, remains an unanswered question.

Assorted Bowling Ball Lot

Obviously, it is full of spelling mistakes and lack of space meant there is no real detail but looking back over this entry, it is interesting to see how full of numbers it is. I noted the temperature, the bowling score, how many widths I swam and even gave the day a rating out of ten. What I totally failed to mention is who else was involved (presumably I didn’t do all this alone, aged 10) but other people were not significant enough for me to notice. In hindsight, autistic traits are clearly already there.

So, was ten-year-old me correct? Was this a day I would always remember? No.