Field Trips

             I have been incredibly lucky during lockdown that I have been able to get outside every day for my state mandated walk. In fact, don’t tell anyone but I am usually out for longer than the hour I was allowed. I am such a rebel!

               Over the last few weeks, I have been swerving kids on bicycles, keeping a wide berth of the cows (and their deposits) and remembering to open gates with my elbows. I noticed this week, the government put out advise for people who go outside to ‘regularly wash clothing’ and thought what it says about the state of the country, which meant that particular piece of advice was needed.

               While wandering through fields and passed housing estates things that caught my attention have included a man wearing wellington boots even though it hasn’t rained in weeks, the young girl with a chalk stick decorating the pavement who shouted ‘Daddy, how do you spell NHS’ and a woman who nearly leapt into a hedge when somebody on the other side of the road coughed.

               My sense of direction can be a weak point, I remember hearing (about 30 years ago) that looking at a map makes you a target for muggers and that has lodged inside me to such an extent that I frequently wander around with no idea where I am. My inner confidence is that I will work it out eventually and if all else fails, I find a building. A building must be somehow connected to a road, by following a road, I will find a road sign and assuming I recognise somewhere on the sign, all will be fine. It was not long ago, I accidentally wondered into a stranger’s back garden. Luckily, nobody challenged me as I went round the side of their property to find the road.

               I have no idea about varieties of plants, birds or any other kind of wildlife. As a rule of thumb, I can distinguish between a squirrel and a butterfly but would struggle with any further detail. This is possibly because Mum was always a keen gardener and that must have put me off. To help with this, I got a book with pictures of varieties of trees and creatures, but it is too heavy to carry around. I should put this on my to-do list, along with cleaning behind the fridge or finding an ISA but I think having a nap will always take priority.

Be Careful What You Wish For

Last week I made the mistake of saying I was enjoying the lockdown. It gave me so much time to do things I always wanted to do plus relax and unwind. I am lucky enough to be in an area with green space and I have no kids to home school. I said I wouldn’t mind it going on a little longer.

Well, in a classic case of be careful what you wish for, I was out on my daily exercise on Tuesday and my phone rang while I was in a sunny field. The birds were singing, the trees were green in fact an idyllic location and to quote Marti Webb:

‘I’d like to choose how I hear the news
Take me to a park that’s covered with trees
Tell me on a Sunday please’

Ok, the pedants will point out it wasn’t a Sunday but that is unimportant. The news is I am ‘unlikely’ to be back to work before 2021. Quite when in 2021, remains unspecified. So back to job hunting for me.

I found a position displayed online looking for people to be a Customer Advisor for the government. A six-month work from home job, advising people on their financial options. This sounds great, working from home to tide me over until the day job returns. The next morning, I got an email which began ‘We are excited to invite you to complete our new behaviour-based, psychometric assessment’

It was a series of online games, ‘press P when you see an odd number’ and ‘copy the sequence of flashing lights’, that kind of thing. There were nine of these tests and almost as soon as I was finished I received an email featuring a six page psychological evaluation. Of all the industries you hear about robots taking over, psychiatry has never been one I have considered. Also, nowhere in these six pages was any kind of note about if I have, or indeed, am suited to the job.

Later that day, I saw a job advertised for people to get paid by filling in surveys. There were a few different firms and they each boasted of earnings of £200-£300, so by doing a few it could be equivalent to a proper job. I decided to set up a new email account for this, so I can keep things separate and it was a great decision because within moments of registering I had 13 emails from companies all wanting me to set up accounts, register user names and passwords, enter personal details and generally bombard my senses with bright colours and information overload.

I did a survey on various TV adverts. What did I like? How did it make me feel? What brand was it for? On completion I found I had earned 50p and had the option to earn another 5p. I also found out it was gift vouchers rather than cash. I decided I didn’t want to wait for the shops to open to spend my 50p voucher so closed the email. I have not opened it since. It occurs to me as I write this that it was never made clear what the vouchers were actually for.

That night I felt quite low and overwhelmed, a couple of wasted days getting nowhere as months stretch before me. However the next morning I got an email saying I am eligible for the self-employment income support scheme which I will be able to apply for by the 18th May and get paid within a week. I also won a free lottery ticket for the draw on Saturday (how exciting!).

So after a rollercoaster week, I think I am back to where I started. Enjoying the lockdown, with the chance to relax and unwind. I will wait and see what happens next, I am fortunate enough that I have no urgent need and also lucky enough not to need to complete our new behaviour-based, psychometric assessment or complete a follow-up survey for an additional 5p

 

Meeting Me

Being in lockdown for well over a month has given me the chance to do many different things. I have been learning sign language, something I have been meaning to do for years and finally have the time and the attention span to deal with.

Sign language is great, so many of the signs are exactly what you think. Hello is a wave, good is thumbs up and anyone who has attended a kid’s party could correctly guess what monkey and lion would be.

Also, I have drunk nothing but water for the whole of April and it has made no difference at all. I keep hearing stories of virtuous people whose lives have been changed by the power of the H20 diet, but my energy, sleep and general wellbeing remain unchanged. I find this reassuring as water is so dull, I am quite pleased. What has been more interesting is what have learned about autistic me.

Firstly, the concept of ‘now’, ‘next’ and ‘future’. I need a task to do ‘now’, the thing at the top of the list. I cannot have a time where there is nothing to do, even if it is something really small like getting a drink. Then I need a ‘next’ task, what I will do after the ‘now’ thing is done. I find it extremely hard to change these two things once they are decided, anything else will need to wait until the ‘now’ and ‘next’ are completed. Everything else is ‘future’, this is a massively flexible jumble of stuff, sometimes as lists other times just floating around my brain. The most urgent of the ‘future’ tasks will be promoted into the ‘next’ space but never into ‘now’.

Secondly, ‘spoons’ and ‘stims’. I didn’t really understand this is so widely used in the autistic community, but it is a way of self-measuring. Spoons are energy, making sure there is enough energy to complete whatever tasks need doing, knowing what I can cope with. Too much sensory input can lead me to run out of spoons and shutdown. Stims are the repetitive movements I do, foot tapping, playing with bits of Sellotape or stroking my neck are three classics for me. The more stressed I get, the more I stim. I hadn’t known this was a classic autistic trait until this week and it has been so interesting to learn more about myself.

There are so many things I still want to do before the end of lockdown. Now, I can do anything I plan for, I am completely self-contained, there is nothing from the outside trying to change my ‘now’ and ‘next’. I don’t want to shout it too loud but I am very happy right now.

School Days, Not The Best Days

The old saying goes ‘school days are the best days of your life’. I think this is about as true as carrots helping with night vision or crusts making hair curl. I hated school.

               I think I had already figured out that most of the things we were learning would have no practical application in real life. Knowing the symbols for chemical elements, the cause of an oxbow lake or the relationship between Hermia and Helena would all be a pointless took the interest away from whatever the government decided that we were being taught.

               My last day at high school was an odd one. We had a big assembly and all the people I expected to stand up and read their own poetry did exactly that, lots of people (including the drama teacher) cried and I just couldn’t get it. What were they all upset about? Are they really going miss hours of essay writing, trigonometry or hockey in the rain?

My walk home that day was possibly the happiest I had ever been. I knew I had exams coming up but didn’t care, the worst was over.

Exam results day also seemed unnecessary. I left it most of the day before working up the effort to go back to school to collect the envelope, it just didn’t seem important. It was only when I started getting phone calls from concerned family members that I finally went but by then I had heard the usual news reports about exams were getting easier and so our achievements were worthless and I think I agreed.

I did fine in my exams and since then nobody has ever asked what grade I got in my religious studies GCSE, which is good as I don’t remember anyway.

Exploding Chicken

               I have always found eating a very functional thing, like dressing or washing so I don’t have any feelings about it. Going out to restaurants has never been something that particularly interests me, and neither is cooking. For me eating is no more than refuelling (and something that often slips my mind). I think I have never considered it a particularly good use of time.

               Because of this I don’t have many particularly strong memories about meals. There was a Christmas dinner that sticks in my mind because it wasn’t ready until 3pm which I felt at the time (and still feel now) was much too late to have lunch. What we ate or who was there I am not clear about.

               However one thing I remember food wise was from the cruise ship days. We had the same menu as the guests which meant the dinners were on rotation, we had the same menu every week for months on end meaning that we always knew exactly what we wanted. The table we always wanted was the circular one in the middle, it was the biggest table and closest to everything on the buffet.

               It fell on ‘Island Night’ which was our outdoor deck party night. The band played and we had to dance with the guests from around 8pm till midnight. The thing with parties is that they are only fun if you want to be there. Doing this week in, week out for years, it quickly became one of my least favourite things. To this day the conga brings me out in a cold sweat. In fact, it got to the point I used to ask to be sent to the Alaskan cruises just to avoid doing Island Night.

               The chicken kiev though was a high point of the evening. We would gather as a team and everyone ordered the same. Inevitably everything would be delivered separately along with a glass of free wine (once tasted, it became obvious why the wine was free). The cutting of the chicken was as much of a performance as the cutting of a wedding cake. As everything came out of the kitchen one at a time, we went thorough the perrfomance several times a night because as the knife came down because the dinner would explode.

               The buttery liquid inside would squirt out at speed often in several directions and we had to be ready to avoid being splattered. We would hold napkins in front of us and hide behind them until the impact had been made emerging to survey the damage. Like a land mine in the form of poultry. Then another kiev would be presented to one of our table mates and the process would be repeated. It was tricky to get the first one as there would be so many interruptions to eating it would be cold before you finished.

               I remember asking the chef how it was the velocity was quite so strong, but he didn’t seem to understand what I was on about. Perhaps he didn’t know either, it remains one of life’s great mysteries.  

Neighbourhood Spy

There has been a lot of discussion about what is (and isn’t) allowed during this time…

  • What is a ‘reasonable distance’?
  • What is a ‘basic need’?
  • What is a ‘necessity’?

A group of people have emerged who are happy to ‘bend’ the rules, justifying their actions to themselves often based around the grey areas. Then there are the opposite, the curtain twitchers, the people who rush off and inform the police if their neighbour goes out for a second time in a day despite having no idea why. I hope that I (and most people) don’t fall into either of these groups. We follow the rules as best as we can, protect ourselves and our families and let everyone else sort themselves out.

Today I was on my brisk daily walk through the park as I have done most days since lockdown begun. It does me good to get out of the house and feel some sunshine. I walk alone, keep my distance from others, avoid touching surfaces and wash my hands when I return.

The park is the only green space around and there were kids riding bikes, joggers, people on benches and all the other things you would expect. Today I decided to take some photos on my journey of the swans in the pond and the flowers, perhaps my doing that is questionable under the guidelines but anyway…

I took a photo of the beautiful flower bed in the centre of the park as I didn’t recognise it and want to look it up later. As I did it a young couple who had been sunbathing on the other side of the flowers (and far away from anyone else) immediately jumped up and started doing star jumps.

I wonder how many other times they had had to jump up already this afternoon? I maybe could have shouted that I wasn’t some kind of neighbourhood spy about to sell photos to the local press but decided to leave them to it, after all it is Easter.

Easter (is it?)

I had completely forgotten that it was Easter week. After all, every day is the same, the kids stopped going to school what seems like ages ago and this was never the most exciting holiday. Really apart from chocolate there is not much more to it…

What reminded me was Jacinda Ardern, the Prime Minister of New Zealand announcing that the Easter Bunny should be considered a ‘key worker’ along with the tooth fairy.

Last years Easter activities went as follows

  • Easter Egg Hunt – 2 children attended, neither spoke English.
  • Meet the Easter Bunny (a Receptionist dressed up) – nobody came at all came to that…
  • Easter basket making – 1 child
  • Hot cross bun delivery, we delivered to 88 rooms, accompanied by the Easter bunny. Only four doors were answered.

To put it plainly, there is very little interest in Easter, other than no going to school.

However while I was on the cruise ships, Easter was a whole different thing because of the Church services. There was little in our year more difficult that arranging church services and this was because of the lack of registered clergy. On a normal Sunday we would ask for a volunteer to lead the service and surprizingly this always worked, many weeks we had several to pick from.

Christmas and Easter were different though, our head office arranged to send somebody specifically to run the services. Trouble is, there are very few registered clergy free at these times as they all have their home churches to look after, so they people we were sent were frequently ‘challenging’ and fell into two distinct groups. A) people with a hopeless grasp on reality, unable to do anything for themselves, who couldn’t understand that they were not our top priority or B) people who retired many many years ago, who needed lots of adjustments to their cabins (one that sticks in my memory managed to loose both his hearing aid and false teeth).

We never had any idea what these people would require for their services, often neither did they, and you could guarantee that it would change several times in the run up to the big day. They would, inevitably, not like whichever venue we allocated for their services (too big, too small, too far away, too noisy) so we would move it for them and that wouldn’t be right either…

It wasn’t just Christmas and Easter we catered for but any religious holiday, often the Jewish holidays were equally popular although it was rare for us to be sent a Rabbi so we would be back to asking for volunteers for Rosh Hashanah, Passover and Hanukkah. Some of these require food and drink, which we were happy to arrange but often the other things asked for were totally unpredictable.

The one that sticks in my mind was one Hanukkah, we had a lady send a letter within moments of her boarding the ship asking to run the services along with her business card and letter of recommendation. To be honest, it had slipped my mind that it was Hanukkah so I was very happy to accept her request and phoned her to make arrangements.

The following day, another letter came from a different lady asking to run the services. I thanked her for her offer but explained we already had somebody. Then the letters came, so many letters. It seemed like her entire congregation were sailing and all wanted this lady instead. So then I suggested that perhaps they could work together. What I failed to realise is the history between these two went back years…

To say they didn’t get on was an understatement, each wanted ‘control’ of the services. They had their own program and their own supporters. Whoever arrived first each day, took ‘control’ and so every day the services were starting earlier and earlier so that when the other arrived, it would be too late for them to take over and the letters continued to arrive.

In the end the Customer Services Director had to call them both in and threaten to cancel the services if they couldn’t sort something out.

Perhaps I should be pleased that now, I only need to deliver hot cross buns to empty rooms.

Autistic Self-Isolation

For the last week we have been instructed to self-isolate, not to go anywhere unless it is essential. From what I can gather this has proved very difficult for many people, with great increases in general anxiety, sleep problems, lack of focus and other associated problems. However not for me. Perhaps it is because I am autistic or having worked on cruise ships, maybe I am just used to it.

I spent twelve years at sea, with people who thought that crocs counted as formal wear, answered ‘hello’ with ‘no thank-you’ or would yell the word ‘bathroom’ at you from down the hall. Having so many people from so many places in a confined space, meant it was hardly surprizing that we would be on regular ‘lockdown’ due to an outbreak of flu or norovirus. I would say that about two weeks every three months was an average. For this time, we would only be allowed out of the cabins to work (if essential) and to eat. Social events would be cancelled, guest interaction minimised, non-essential things closed and everywhere would be disinfected twice a day. One of the more tedious jobs was wiping the laminated covers of the library books, what the point of this was (when we couldn’t wipe the pages) is anyone’s guess.

This is all fairly similar to what is happening now. The major difference is the sheer number of people involved. It feels like we are over the panic-buying stage. The supermarket was over-flowing with toilet roll yesterday, they had an entire aisle of it plus two huge pallets. I wonder if anyone has risk assessed the flammability of all that.

For me, self-isolation is not such a bad thing. Like many autistic people, I don’t mind structure and following rules (assuming I understand what they are). Two of my least favourite things are crowds and sudden noises, with everyone being inside, these are no longer a problem. I take my daily walk through deserted streets and it is just lovely. People actively avoid entering my personal space and nobody is tempted to pat my shoulder or shake my hand, it would be great if that continued long after this is all over.

One problem I do have is that Covid-19 is a bad choice for an ‘intense interest’. I like things I can research, learn and find answers to. Yet, as this is new, nobody really knows. Some experts are saying it is getting better, some say it is getting worse. The police say different things to different people and the politicians say ‘wash your hands’ and ‘stay two meters apart’, yet every day another one is infected. This is no good for an intense interest.

Instead I am trying to find news about something else, anything else. There was a story on the news the other day about two people who reached 116, two weeks ago I wouldn’t have paid any attention to this, now it seems the best thing in the world.

I was reading all about Angela Merkel who has tested negative three times but has decided to still carry self-isolating for a few more days. I can relate to that…

My Week

Today I am sitting on a train doing a cross country journey, the day after the government said the police now have the power to fine people for doing exactly this.

This has been the odd end to an equally odd week. This time last week, the Prime Minister announced that bars and restaurants have to close. To be completely honest, this was great news. I hate working evenings and finishing at 5pm sounded perfect, no bingo for a few weeks is brilliant. Nobody needs to hear about little ducks, Heinz varieties or what is top of the shop.

I think I always knew. There was very little point in making a new schedule for the following week; but I did one anyway, trying to plan a series of events that don’t involve groups or anything to touch is not easy. Essentially, I had to find a load of things that were outside (away from confined spaces) and nobody would actually want to do. I put on a six mile hike to a national trust property, that the national trust closed an hour after we went to print. I put on a visit to a farm, which the farmer cancelled the following day and I put on a visit to the lifeboat station and guess what I got an email saying that wasn’t possible either. Oh well, as it happened most of our guests had cancelled anyway.

Though not the Johnsons, the Johnsons have been with us several times and not only didn’t want to go, they actually extended their stay. ‘Now the kids are off school, prices are way cheaper than normal school holidays’. They also come to everything, no matter how rubbish it is. Their kids were in my activities room playing games while the Dad sat on his phone and it was then I noticed a press release on the company’s corporate website telling the guests that we were closing on Friday. This was news to me and also everyone else on duty. We were closing for seven weeks (much longer than we were expecting). It is a lovely way to find out I am unemployed.

The next day, I got an email telling me that not only am I out of work, I need to move out by Friday. Evicting people who have nowhere to go seems to be legally dodgy under the emergency legislation but that is what happened. I was promised that an alternative found be found but no such luck. In the end I had to sort myself out, my colleague is staying in a tent.

The last morning followed a similar pattern, I went to return my keys (as requested) but the door was locked. After 15 mins of waiting outside with my cases and as my taxi arrived, the manager opened an upstairs window and yelled to just leave the keys on the step. This was my last interaction at the resort I have worked for and lived at for the last two years.

So here I am on the train, with all my possessions. There are only four of us onboard, although I have a ticket (for a bargain price of £107.50), there is no sign of a ticket inspector. Each of us is travelling alone with a suitcase. I wonder if they have all been evicted too, or if we are all about to get a fixed penalty notice and if we do, can I count that as a taxable deduction on my self-assessment form?

Other things that occur to me while trying to think of the positives, I won’t have to deliver hot cross buns, find somebody to dress as the Easter bunny or hide chocolate eggs for kids to find often weeks later. So not all bad news.

I heard someone saying would be a brilliant punchline if the Prime Minister stands up next week and shouts ‘April Fools’ to the whole country but that is unlikely now he is isolated with symptoms too. Perhaps he should have taken his own advice about singing happy birthday…

Are you open?

The phones have been ringing all day with this question… Another very frequently asked question is ‘do you think I should cancel my reservation’…

This is a tricky one, firstly it isn’t up to me or my colleagues, adults need to make adult decisions about their holiday plans. Part of my head thinks ‘we don’t need your germs here thanks’ while the other half thinks ‘well, we need some customers to still get paid’.

The bar and the pool have already closed following government advice but looking round the town today, it was like a carnival was happening. The queue outside the chip shop resembled that of a new Harry Potter release.

Here is a list of things I have heard people say in the last few days

  • What is the difference between isolating here or at home?
  • If I stay at home, I will let the virus win
  • Well, there are worse places die than here
  • My kids will have to go to school as I am the only person in the shop who can prepare dressed crab

This morning I saw a man leave a used tissue on the reception desk, this afternoon a family of five (parents, two kids and grandma) checked in for a month ‘they can do their school work anywhere now it is online’.

The government said ‘don’t go to the pubs’, people went to the pub, they closed the pubs.

The government said ‘don’t go to the parks’, people went to parks, they closed the parks.

Let’s see what happens next… I do like having my evenings off but I am self-employed and I also like getting paid…